Privacy policy

At TEDcom.be, we respect your privacy and are committed to protecting your personal data. This Privacy Policy explains what information we collect, why we collect it, how we use it, and your rights under the General Data Protection Regulation (GDPR – EU 2016/679). 1. Who We Are TEDcom.be is an initiative of Esperity BV, a Belgian company working with patient organizations, research institutes, and pharmaceutical companies to empower patients. Website: www.esperity.com Contact: info@esperity.com 2. What Information We Collect The TEDcom.be website is designed for education and community support.

When you visit the site: We may collect technical data such as your IP address, browser type, and browsing behavior (through cookies and analytics).
When you contact us: We collect your name, email address, and any information you include in your message.
No registration required: You can access TEDcom.be without creating an account.

3. How We Use Your Information We use your data only for the following purposes:

To respond to your questions or requests.
To provide updates about the initiative (if you have given consent).
To improve website performance and user experience.
To ensure compliance with legal obligations.

We do not use your data for marketing unless you have explicitly given consent. 4. Legal Basis for Processing Under GDPR, we rely on the following legal bases:

Consent: When you actively give us permission (e.g., signing up for updates or contacting us).
Legitimate interest: When processing is necessary to respond to inquiries or improve services.
Legal obligation: When required by law.

5. How Long We Keep Your Data Contact information: kept only as long as necessary to respond to your inquiry or provide requested information. Technical data (cookies/analytics): retained according to industry standards (see Cookie Policy). We regularly review and securely delete data that is no longer needed. 6. Sharing of Data We do not sell or trade your personal data. In some cases, we may use service providers (e.g., hosting, analytics) who process data under our instructions and in compliance with GDPR. If legally required, we may share data with authorities. 7. Your Rights Under GDPR You have the following rights regarding your personal data:

Right of access – know what data we hold about you.
Right to rectification – request correction of inaccurate data.
Right to erasure – ask us to delete your data.
Right to restrict processing – limit how your data is used.
Right to object – stop us from processing your data in certain situations.
Right to data portability – receive your data in a structured, commonly used format.
Right to withdraw consent – at any time, without affecting previous lawful processing.

If you believe your data has not been handled in accordance with GDPR, you also have the right to file a complaint with your local Data Protection Authority. In Belgium, this is the: Gegevensbeschermingsautoriteit / Autorité de protection des données (APD-GBA) Drukpersstraat 35, 1000 Brussels contact@apd-gba.be +32 (0)2 274 48 00 www.gegevensbeschermingsautoriteit.be To exercise your rights directly with us, please contact: info@esperity.com 8. Cookies and Analytics TEDcom.be uses cookies to improve website functionality and understand how visitors use the site. Essential cookies: required for the site to function. Analytics cookies: help us improve content and usability (Google Analytics or equivalent). You can adjust your cookie preferences via your browser settings. See our Cookie Policy for more details. 9. External Links and Communities TEDcom.be may contain links to external websites, including the TED Facebook community. We are not responsible for the privacy practices or content of external sites. When you interact in these communities, your data is subject to the policies of those platforms. 10. Security We take appropriate technical and organizational measures to protect your personal data against loss, misuse, unauthorized access, or disclosure. However, no online system can be 100% secure, so we cannot guarantee absolute protection. 11. Changes to This Policy We may update this Privacy Policy from time to time. Updates will be posted on this page with a revised last updated date. Please check back periodically. 12. Contact Information If you have any questions about this Privacy Policy or how your data is handled, please contact us: Esperity BV Brussels, Belgium info@esperity.com www.esperity.com